Jiao Fei’s hometown is 1200 kilometers away from the coast. Unfortunately, Jiao Fei and his brother, who is six years older than him, both suffer from Juvenile Parkinson disease. Parkinson disease itself is not that strange, however, it is rare for children. Jiao Fei was just about ten years old when he was first found with the disease. It was the first case of Juvenile Parkinson disease in China with record, and the fourth among very young children in the world.
Juvenile Parkinson disease, as a kind of rare disease of Parkinson, is different from the one found with adults. It is commonly found among children or teenagers, which is just 10% of all the patients of Parkinson Disease. Therefore, it is recognized as a kind of rare disease by the World Organization for Rare Disorders. Because of the tremor of the muscle, patients often call themselves “robots”.
If it is not for the dark red scar on his right chest and the obvious swelling part caused by the battery of the brain pacemaker, it would be hard to believe that this strong young man has been tortured by Juvenile Parkinson disease for over ten years.
Although it has been reported by several media, very few people know about the two brothers’ disease. Jiao Fei never mentioned it to other villagers because of the bias people hold in countryside.
At present, to pay for the medical expense of more than 1000 yuan per month, and to pay back the debt for the newly built house, Jiao Fei’s father has to work at the coal mine. His mother does some cooking for people in town to help support the family. Jiao Fei had tried to work in Xi’an with the help of another patient, but had to give up due to his disease.Now, Jiao Fei’s biggest wish is to find a job, through which he can make a living. He also wishes he can help to support his family, and give some hopes to his terribly fatigued parents.